An image of a butterfly usually stands in our imagination as a metaphor of beauty, brightness, fragility and lightness. But have you ever thought about a butterfly as a synonym of suffering? For some of us this is the only known definition.
Butterfly Children are those born with a serious genetic mutation causing blistering, scarring and disfiguring of skin from a minor trauma. So why a butterfly? As the analogy goes, the only touch to the wings of the tiny creature may break them irrevocably.
Take a closer look into how a life of such a child looks like. Trust me, it won’t hurt. You.
Epidermolysis bullosa (EB) is a medical term that stands behind the beautiful name. It is a group of inherited connective tissue diseases that cause blisters in the skin and mucosal membranes. While many who live with milder forms of EB can lead long and productive lives, the list of manifestations and secondary complications in the more severe forms is lengthy and requires multiple interventions from a range of medical specialists. Those forms of EB result in disfigurement, disability, and in some cases early death.
Because of the the multiple wounds that appear on the skin of the children, every day and every touch is full of pain for them. However, with the special bandages and care, the suffering may be mitigated and a chance to lead a life without pain may be given to them.
Just a week before Easter, on the 4th of April, Kozminski Students will organize a charity event, where every caring soul will have an opportunity to make their input.
Come to Atrium from 10 to 17 and help a butterfly fly again!
*Text provided by Katarina Sobko